The purpose of this memorial page  is to raise money in Jaxon's memory to help, support and enhance a more positive Neonatal Unit experience for Parents and Siblings. Some battles are just too overwhelming for such an angel. He spent 3 months in the NICU at Kings College Hospital where they made us feel at home with him. Jaxons Wish is  to raise money in his memory to help, support and enhance a more positive Neonatal Unit experience for Parents and Siblings. Jaxon's little step may be the beginning of a great journey. We spent 3 months in the NICU and have come up with ideas on ways to help along the way. Jaxon's wish is support all his NICU friends.

 About Our Jaxon,

I have had a terrible experience of fertility. I have 8 miscarriages and when I fell pregnant with my now 6 year old daughter we had been told we would never have children, so I did the london marathon and then found out I was 6 weeks pregnant. 

Jaxon was different. We were not trying although we had always wanted Lottie to have a sibling. I had been told again on March 27th that another child would not happen for me. Me and my partner were due to go amsterdam in April. I had been really sick with a kidney infection and I did not even put 2 and 2 together that I may be pregnant. We went to Amsterdam and I was so unwell and just put it down to travel. When I got back something inside told me to do a test. there it was positive. Due to my history I went to EPU as I had pains. We found out I was 11 weeks pregnant but we also found out the baby had what was called an omphalacele. Parts of baby were growing in the cord. We were referred to Harris Birthwright for furter testing. 

We had all the tests under the sun including a needle right into the babys placenta to look for genetic issues CVS. As I waitied for these to come back baby started kicking at 14 weeks. So strong, never kept still. I felt this was fight, showing me they wanted to live. All the tests results came back negative and I was told baby was a boy. I have always wanted to be a mama to a boy. so to me this was happening. We were advised we could terminate but that his issue could be fixed. Termination for me was not an option and I wanted to fight like my boy was fighting inside me. Lottie picked his name when we took her for a scan to tell her she was gonna be a sister. To us our family was complete. 

We were told Jaxon had a major exomphalos as he had his liver, stomach and bowel inside the cord. We went for scans every 2 weeks and he was growing fine with no other complications we were warned his lungs looked slightly underdeveloped but that it was hard to tell this on a scan. suddenly had to become google experts to learn about his  complications yet despite these he showed passion to live through constant movements and determination.

Although Jaxon was due to come into the world on the 7^th  November via planned c section that fighting spirit that we would come to learn as “ Jaxons terms” meant that on the 4^th November he decided that he wanted to make an entrance ,when he first met us all 6lb 3oz of a gorgeous lottie lookalike with a huge mop of Daddys dark brown hair. We were in love. Our family was complete.

Jaxon James Christopher Campbell Blessed this world with his life for 3 months 9 days. Words fail to describe Jaxon’s fierce passion for life. He thrived like few people ever do or ever will. No matter what he was going through, he soldiered on with such dignity and grace giving the brightest smiles when he could and could tell volumes of stories with his beautiful big eyes. Jaxon spent 99 days in the NICU but He fought like the bravest little lion in the pride and despite being on a journey that no parent should have to take and even on mine and Dan’s hardest Days in the Unit, Jaxon still gave us the strength to carry on fighting with him. Anyone in the same room as Jaxon for one minute came to learn that he was a perfect baby. We were told everyday how gorgeous he was, how thick his hair was and those eyes…. How I miss the mornings asking you how you doing, how you feeling and him looking at me like the crazy lady is back. But he knew I was his  mummy.

Having a baby in the NICU is an intense experience, a rollercoaster which is a step by step process with many forward and many backwards moments but witnessing the determination of these babies fighting for each breath they take, is life changing and all you can do is watch helplessly something parents are not programmed to do. How we longed for late feeds, nappy changes and no sleep. Jaxon made friends and family for life in the NICU, He gained a mischievous reputation for Pulling tubes out, we had to use socks on your hands to try stop you, although you quickly learned that you could still grab even with those on,  fighting through enough medication to sedate an elephant, to just kicking off just because his nurse dared to check on another baby just for him to be fine staring at them when they returned. Our cheeky little boy was well known and we wouldn’t of had him any other way. He loved his NICU family and would listen intently to his morning rounds, We had so many fun time with nurses looking after you, Auntie Beth making you Elton John glasses was just one that. He brought lots of smiles in a very hard times. We held hands, We sang, we laughed, we cried all together willing miracles to happen and dreams to come true right up to the very end. Jaxon had an extraordinary spirit and genuine love for all around him especially his big sister Lottie. We thank you all for your endless love and devotion to us and our little boy. We are going to miss your hugs and words of encouragement. I miss the NICU I actually feel very lost since I returned home. 

We spent everyday and night with him and Lottie visited on weekends. Jaxon had his first surgury on 10th Jan 24 to widen the stork of his expomhalos so that his organs may slowley be compressed in, this was a huge success however Jaxons lungs were so underdeveloped he started to go into Pulmonary hypolasia and hypertension. Jaxon lost is battle on 9/2/2024.

My mission is now in Jaxons name to support journeys of other parents and siblings in the NICU at Kings. I want his memory to be eternal and to make purpose in my pain.